Hi Everyone,

I've recently come off my meds, I was on 25mg of MTX weekly injections. Can I ask what peoples experiences are in terms of how soon do symtpoms tend to reappear after you stop taking MTX? It's been nearly 5 weeks and I don't feel a twinge... this is great! however, just trying to prepare myself in case it hits me like a double decker bus which would be not so great.

Appreciate your experiences.

Many thanks,
D

Thanks Rose, useful to know. I've come off because we will TTC once I've been off MTX for 3 months. I've been on MTX for 2 years which is when i was finally diagnosed. I stopped the plaquenil back in April.

Is there a reason you had to stop your meds?

x

Hi everyone,

So I am 11 weeks off MTX and last week RA started to make itself known. Its a little strange though as I feel terrible, my hands are stiff and painful, my shoulders are aching, my knees feel twingy and I feel very tired. But I cannot see obvious swelling in my joints even though they hurt. Is this normal? Or is this just the start of it?

I feel so down and having to explain to people at work is embarrassing. I hate having to go through and explain it all with new people again, they just don't understand, but it's nit their fault I know and I'm just being angry again. It's coming up to 2 years since I was finally diagnosed, I just hope this isn't the start of the beginning as I know it.

I came off the meds so we could try for a baby, so I know it will be worth it when/if it happens, fingers crossed.

Sorry - that is my rant over, I can't sleep and needed to vent. Thx for listening.

Donna x

Hi i am also off mtx and have been for 4 weeks now i am fine

christine